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Saving Babies?

Saving Babies?

The Consequences of Newborn Genetic Screening

by Stefan Timmermans and Mara Buchbinder
Hardback
Publication Date: 04/12/2012

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It has been close to six decades since Watson and Crick discovered the structure of DNA and more than ten years since the human genome was decoded. Today, through the collection and analysis of a small blood sample, every baby born in the United States is screened for more than fifty genetic disorders. Though the early detection of these abnormalities can potentially save lives, the test also has a high percentage of false positives-inaccurate results that can take a brutal emotional toll on parents before they are corrected. Now some doctors are questioning whether the benefits of these screenings outweigh the stress and pain they sometimes produce. In Saving Babies?, Stefan Timmermans and Mara Buchbinder evaluate the consequences and benefits of state-mandated newborn screening-and the larger policy questions they raise about the inherent inequalities in American medical care that limit the effectiveness of this potentially lifesaving technology. Drawing on observations and interviews with families, doctors, and policy actors, Timmermans and Buchbinder have given us the first ethnographic study of how parents and geneticists resolve the many uncertainties in screening newborns. Ideal for scholars of medicine, public health, and public policy, this book is destined to become a classic in its field.
ISBN:
9780226924977
9780226924977
Category:
Health systems & services
Format:
Hardback
Publication Date:
04-12-2012
Language:
English
Publisher:
The University of Chicago Press
Country of origin:
United States
Pages:
320
Dimensions (mm):
23x16x2mm
Weight:
0.57kg

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